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the patient

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We got up early and headed downtown Chicago for Evy’s appointment with a pediatric specialist yesterday. My mom and Anni were big helps as well. We waited almost two hours but finally got in and the doctor was great! I noticed Hebrew written on his ring and after talking more he shared he was a seminary grad. He has four kids and spends some of every year in Malawi. Umm, cool. His initial feeling was that her antibodies from birth were at a low around 1 year and she has had a bad string of unrelated infections. Of course it didn’t help my case as I was describing my sick, convulsing baby and she was toddling around giggling and smiling at the interns. She also climbed up on the chair and the window and while we were talking was pulling the window curtain chain over her head. I realized how much I have become laid back about safety as where we live there are machetes and open fires everywhere. A little curtain chain is nothing. After a consultation we started the testing. She had a chest X-ray and they took 6 viles of blood. Poor baby. He also is talking to a neurologist to schedule her EKG that she will have to be sedated for and we will try to do closer to my mom’s house. We go back next week for results and more discussion on what is next. Thanks everyone for praying. We are relieved to be in a place where we can investigate and get some answers.

I got to see the skyline. “Anni, you see that. That is the best city in the world.”

this is how I felt too after 2 hours!

Yeah for clean and good (even if not fast) medical care
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